Videos:
- "In Their Own Words” Produced and directed by Kathy Vander for the Michigan Parkinson Foundation, funded in part by the Michigan Department of Community Health. Professionally produced, narrated by Rich Fisher, Half hour program featuring Michigan residents with Parkinson’s disease who describe their hopes, challenges and ways to overcome living with a Chronic disease.
- “Care for the Parkinsonian in Nursing Homes” Funded through a grant from Art Van, this 45 minute program, although dated, contains the essentials of caring for a person with PD in an extended care facility. Can be viewed in 15 minute segments to instruct staff about the complexities of dealing with PD. Commentary by people with PD and their care partners.
Research Websites
www.pdtrials.org
www.clinicaltrials.gov
Resource Websites
NATIONAL & INTERNATIONAL PARKINSON'S EDUCATIONAL RESOURCES:
National Parkinson Foundation
www.parkinson.org
Bob Hope Parkinson’s Research Center
1501 NW 9th Avenue
Miami, FL 33136-1494
(800) 327-4545
American Parkinson Disease Foundation
(APDA)
1250 Hylan Boulevard, Suite 4B
Staten Island, New York 10305-1946
Parkinson’s Action Network (PAN) (advocacy group)
www.parkinsonsaction.org
Parkinson’s Disease Foundation
(PDF)
www.pdf.org
1359 Broadway, Suite 1509
New York, NY 10018
(800)457-6676
Parkinson’s Society of Canada
www.parkinson.ca
4211 Yonge Streeet, Suite 316
Toronto, ON M2P 2!9
(416) 227-9700, (800) 565-3000
OTHER MICHIGAN RESOURCES:
Parkinson’s Association of Western
Michigan (PAWN)
(If you reside in Grand Rapids, MI area)
260 Jefferson Ave SE, Ste 210
Grand Rapids, MI 49503-4597
(616) 954-8077, (800) 617-8711
www.pawm.org
Michigan Dementia Coalition
www.dementiacoalition.org
Area Agency on Aging
www.mi-seniors.org
YOUNG ONSET RESOURCES:
APDA Young Parkinson’s Information
and Referral Center
Glenbrook Hospital, 2100 Pfingsten Road
Glenview, IL 60025
(800) 223-9776
Young Onset Parkinson’s Association
www.yopa.org
PARKINSON PLUS ORGANIZATIONS:
Essential Tremor
International Essential Tremor Association
www.essentialtremor.org
Michigan Tremor Support Group
www.tremorsupport.com
Society for Progressive Supranuclear Palsy Society for PSP
Woodholme Medical Building
1838 Greene Tree Road, Suite 515
Baltimore, MD 21208
(800) 457-4777, Fax: (410) 486-4283
www.psp.org
ADDITIONAL WEBSITE RESOURCES:
Alzheimer's Association
www.alzgmc.org
CareGiving.com Helping You Help Aging Relatives
www.caregiving.com
Medicaid and Medicare Assistance Programs
www.mymmap.org
www.neurology.medscape.com/Medscape/Nurses
www.neurologychannel.com
www.neurosurgery.mgh.Harvard.edu
www.nfcacares.org (National Family Caregivers Association)
www.braintalk.org (Brain Talk Communities – Dept. of Neurology,
Massachusetts General Hospital)
www.nlm.nih.gov/medlineplus/parkinsonsdisease.html
www.wemove.org
www.worldpdcongress.org (World Parkinson Congress)
OTHER RESOURCES:
Huntington's Disease Society of America,
Michigan Chapter
Sparrow Diamondale Center 4000
N. Michigan Road
Diamondale, MI 48821
(517) 646-0920