FREQUENTLY
ASKED QUESTIONS
Q: Do I have to pay dues or make an
appointment to attend a meeting?
A: There is no charge for any support group
meeting, but you may be asked to donate a dollar
or two to defray the costs of mailing notices,
buying refreshments, etc. It is always good
to call the support group facilitator before
attending for the first time to understand where
and when the meeting will take place.
Q: Is the support group only for people
with Parkinson’s?
A: Parkinson’s Disease affects everybody
associated with the patient – spouse,
family, relatives, and friends. The most valuable
thing you will take away from a meeting is knowledge.
It is helpful for everyone involved to receive
and understand information about Parkinson’s.
Everyone is welcome.
Q: I’m afraid to attend because
of the way some patients may look.
A: People are concerned they will see long-term
patients who are disabled. Parkinson’s
is a very individual disease in that its progress
and impact are impossible to predict. No two
people will have the same symptoms or respond
in the same way to medication. Attend at least
ONE support group meeting before deciding it
is not for you.
Q: My father is in denial and refuses
to attend a meeting.
A: Do not force anyone to attend. A concerned
family member or friend is welcome to attend
to learn about Parkinson’s and bring that
information back to the patient. Many support
groups have libraries of books and video tapes
on specific topics. Once the family member or
friend sees how a support group works, he can
explain that to the patient. Not everyone will
feel comfortable about support groups, but they
need to know how they can benefit.