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Tags >> Breaking News

Join us for MPF's 11th annual I GAVE MY SOLE FOR PARKINSON'S WALK-A-THONS AND 5K RUNS Eastside  in St. Clair Shores (Saturday June 7) and Westside in Northville (Sunday June 8).

Pre-registration is open now - go to: www.parkinsonsmi.org/mpf-fundraising/walk-a-thon-5k-run.

You can register on line or download a brochure.

Let's raise money and have fun!

Upcoming Walks/Runs:

                August 2 - Alpena
               August 23 - Kalamazoo (walk only)
               September 20 (tentative) - Okemos

 


Governor Snyder proclaimed April as Parkinson's Awareness Month.  View Proclamations on www.michigan.gov

Join local Parkinson Support Groups in celebrating the lives of those living with PD.

April has been proclaimed Parkinson's Awareness Month by Governor Snyder for the State of Michigan.  The disease is a chronic, neurological condition that progresses slowly, with no known cause or cure.  The many symptoms can be managed successfully for many years by using a combination of medications.  Recently, the advances of surgery (deep brain stimulation) have provided another avenue of treatment.  People with Parkinson's do not die of the disease, but their lives and those of their families are altered greatly.

Parkinson's Disease (PD) affects approximately two percent of the population older than 60.  It can also strike younger people like Michael J. Fox.  About 10 percent of individuals with Parkinson's are diagnosed before the age of 50.  an estimated 30,000 people in Michigan have PD.  The cost to Michigan is more than $200 million a year.

Edwin B. George, M.D., Ph.D., Chairman of the Board of Directors of the Michigan Parkinson Foundation (MPF), said, "Parkinson's Awareness Month provides us with an opportunity to educate the public on this disease, whom it affects and what can be done for them.  Researchers continue to study PD, looking for causes and the best ways to help patients with it."

It is being recognized that Parkinson's disease is more than a "movement disorder."  Often, non-motor symptoms begin many years before the appearance of tremor at rest, rigidity of muscles, slowness of movement and problems with balance.  These include sleep difficulties, constipation, depression and a loss of small and can affect a person's quality of life significantly.  Obtaining a diagnosis can take years and be very frustrating and frightening.  Once a diagnosis is made, getting the best possible treatment with appropriate medications, exercise, rehabilitative therapies and mental health counseling can make a great difference in the ability to live life to its fullest.  Despite the best treatment, PD is progressive.  Family members are impacted and may become caregivers for decades.

The Michigan Parkinson Foundation (MPF) offers a variety of services across the state focusing on providing direct services and support to people with Parkinson's and their families.  There are over 55 affiliated support groups to help families learn more about disease management techniques and how to improve the quality of their lives.  Limited funding is available through the MPF to assist individuals in need pay for Parkinson's medications and for adult day care.  MPF also sponsors education programs for individuals with Parkinson's and for healthcare professionals, in an ongoing effort to influence the care of people with PD.   MPF can refer people to specialists with knowledge of the disease and to other community resources.

For more information about Parkinson's disease, contact the Michigan Parkinson Foundation at 800-852-9781 or view the website at www.parkinsonsmi.org

The Michigan Parkinson Foundation is a non-profit organization, funded              primarily by private contributions, memorials and grants.

 

 


 Parkinson's Power Support Group - Muskegon Area, in cooperation Generation Care

   FIRST WEDNESDAY of each month at 11:00 am
at:      Norton Shores Public Library Community Room                        705 Seminole Road,  Norton Shores Mi 49441

 Contact:  Holly Lookabaugh-Deur, PhD, RPT at 231-737-4374 for information.

Muskegon Parkinson Care Partners

   SECOND TUESDAY of each month at 11:00 am
at:      Brownstone Restaurant at Muskegon County Airport
          99 Sinclair Drive, Norton Shores MI 49441
Contact:  Mary Mitchell 231-780-3665


Bay County Parkinson Support Group

    THIRD THURSDAY of each month at 1:00 pm
EXCEPT in April - 4th Thursday, 4/24/14
at:      St. John Evangelical Church
       614 Pine Street, Essexville MI 48732
Contact:  Bob Richard 989-391-9892

 

Kalamazoo Care Partners

SECOND FRIDAY, 4:00 PM
at:  Third Christian Reformed Church
       2400 Winchell Avenue, Kalamazoo
Contact:  Norma Betten  ronorma1301@gmail.com

 

Fremont:  Spectrum Health- Tamarac

THIRD THURSDAY, 3:30 - 5:00 pm
at:      1401 W. Main Street, Fremont MI 49412

Contact:  Gayle Daugherty, S&LP  (231)924-3989

 


Alliance leverages independent nonprofit strengths to enrich programs for Parkinson's community.

For further information, contact Debby Orloff, CEO, MPF at 248-433-1011

The Michigan Parkinson Foundation is pleased to be a founding member of the Alliance of Independent Regional Parkinson Organizations (AIRPO), a consortium recently formed with the shared goals of finding a cure for Parkinson's and supporting those who live with the disease.  AIRPO encourages collaboration, leverages organizational strengths and maximizes efficiency amongst its founding member organizations, which include the Houston Area Parkinson Society, Michigan Parkinson Foundation, Northwest Parkinson's Foundation, Parkinson Association of the Carolinas, and Parkinson Association of the Rockies.

 

AIRPO formalizes a collaboration that began five years ago between Parkinson Disease Foundation (PDF) and several independent regional nonprofit organizations.  AIRPO, by leveraging each member's unique expertise, will enrich programs available to the Parkinson's disease community and build a support network for the member organizational leaders.  PDF will offer AIRPO administrative guidance and support.

 

Michigan Parkinson Foundation Board Chairman, Edwin B. George, MD, PhD, notes that "the Michigan Parkinson Foundation has 30 years of experience providing programs supporting persons with Parkinson's disease to share with the other members of AIRPO, and will benefit from the opportunity to collaborate in the Alliance's national and international education and advocacy efforts.  AIRPO will support the MPF's continued ability to use Michigan dollars to provide the programs needed for Parkinsons in Michigan, while giving us a stronger voice in the issues of importance to persons with Parkinson's disease throughout the country."

 

"Each AIRPO member organization seeks to address the diverse challenges facing the Parkinson's disease community.  AIRPO allows us to develop solutions to these challenges together.  Having the opportunity to learn from each other, and in some cases to work together, will enhance our collective ability to serve people with Parkinson's disease," noted Anne Thobae, Chair of AIRPO and Executive Director of HAPS in Houston Texas.

 

Robin Elliott, President of the Parkinson's Disease Foundation noted, "PDF is proud to collaborate with these outstanding organizations, all of which work tirelessly to meet the needs of people who live with Parkinson's disease and their families.  Together, we will ensure we are doing our best for those to whom we are held accountable - people with Parkinson's disease and their families."

 


Hopefully you received a letter in the mail during the month of November announcing MPF's Annual Appeal.  It's not too late to donate to the cause!  Please consider contributing generously!  

The Michigan Parkinson Foundation (MPF) is an independent 501 (c)3 charitable organization, not affiliated with any national group.  Monies raised help to support close to 60 affiliated support groups, educational programs, information and referral, patient  services, and financial support for day care and medication for people affected by Parkinson's disease in Michigan. 

As you can see by articles and announcements in this website, MPF is a vital organization, comprised of hundreds of volunteers throughout Michigan.  The direct support provided by its programs and services touch people directly.  We need your financial support to continue these valuable efforts.  Thank you!!!!!

For questions, or concerns, please contact us at (248)433-1011 or email info@parkinsonsmi.org.  Come to visit!

 

 




The Professional Advisory Board of the Michigan Parkinson Foundation has announced that applications will be accepted for the Raymond B. Bauer, MD, Research Award.  This year, priority will be awarded to the examination of methods to improve care of people with Parkinson's disease in hospitals and extended care facilities.  Application format is available on 

https://www.parkinsonsmi.org/programs-support-groups/bauer-research-fellowship

For questions, please contact Debby Orloff, CEO, at (248)433-1011.  The deadline for application is March 31, 2013


The following changes and changes to Support Groups as of 3/19/14:

Cadillac:  On Hold.  Contact Diane Patterson at the Senior Center:  (231)779-9420

Monroe:  On Hold.  Contact Michigan Parkinson Foundation (248)433-1011

Kalamazoo Care Partners:  NEW      Meetings are held at the Third Christian Reformed Church, 2400 Winchell Avenue, Kalamazoo.  Contact Nancy Schullery (269)372-7241

Ionia:  Date,  time, location  change to:  3rd Wednesday at 1:30 pm.  Ionia Commission on Aging, 115 Hudson Street, Ionia MI 48846.  Contact Retta McCaul (616)693-2121.

Muskegon:  NEW     Norton Shores Public Library,  405 Seminole Rd., Norton Shores MI 49441    Contact Holly Lookabaugh-Deur (231)737-4374

Bay City Young Onset Support Group changes time and place:
          3rd Tuesday from 2:00 - 3:30 pm  NOTE:  APRIL 2014 MEETING AT 1:00 PM
          Area Agency on Aging Region 7
          1615 S. Euclid Ave, Bay City MI.     Contact Joani Szczepanski (989)392-3940

 


Tips provided by Board Member, Anne Hansen

To find the Michigan Parkinson Foundation of Facebook, simply type "Michigan Parkinson Foundation" into the search bar. The MPF fan page should be the first result. There is a link to the right that says "Become a Fan." Just click on that and you're there! Or you can click on the MPF logo and become a fan from there.

Michigan Parkinson Foundation's Facebook page can be used to spread the word to family and friends about the May 22 and May 23 I Gave My Sole for Parkinson's Walk-a-thon and 5K Runs. Here are directions:

  1. Go to the MPF Facebook fan page through your Facebook account.

  2. Click on the link on the upper left of the page "Suggest to Friends." It's right under the MPF logo.

  3. Click on which friends you'd like to invite.

  4. Click on "Send Invitations.

A message will be sent to your selected friends asking them to become a fan.