MPF Resources / Research
Products Available Through MPF
- Brochures:
- Michigan Parkinson Foundation
- Facts about Parkinson's
- Michigan Parkinson Foundation Support Groups
- Critical Information form (to be used by people who are entering a hospital or other care facility). You complete the form by writing information that would be helpful for those providing care for you.
- Physician Prescription Form: for physician to refer you to Michigan Parkinson Foundation programs.
- Tee Shirts (with MPF insignia)
- Disability Information
- Videos:
- "In Their Own Words" (←click title to watch video) Produced and directed by Kathy Vander for the Michigan Parkinson Foundation, funded in part by the Michigan Department of Community Health. Professionally produced, narrated by Rich Fisher, Half hour program featuring Michigan residents with Parkinson's disease who describe their hopes, challenges and ways to overcome living with a Chronic disease.
- "Care for the Parkinsonian in Nursing Homes" (←click title to watch video) Funded through a grant from Art Van, this 45 minute program, although dated, contains the essentials of caring for a person with PD in an extended care facility. Can be viewed in 15 minute segments to instruct staff about the complexities of dealing with PD. Commentary by people with PD and their care partners.
Research Websites
Neurology Referral List
pdf Neurology Referral List for MPF (229 KB)
Resource Websites
NATIONAL & INTERNATIONAL PARKINSON'S EDUCATIONAL RESOURCES:
- National Parkinson Foundation
www.parkinson.org
Miami Office:
200 SE 1st Street
Suite 800
Miami, FL 33131
New York Office:
1359 Broadway
Suite 1509
New York, NY 10018
- American Parkinson Disease Foundation (APDA)
apdaparkinson.org
1250 Hylan Boulevard, Suite 4B
Staten Island, New York 10305-1946
- Parkinson's Society of Canada
www.parkinson.ca
4211 Yonge Street Suite 316North York, ON M2P 2A9, Canada(416) 227-9700, (800) 565-3000
- International Parkinson and Movement Disorder Society
www.movementdisorders.org
555 East Wells Street, Suite 1100
Milwaukee, WI 53202-3823 USA
(414) 276-2145
OTHER MICHIGAN RESOURCES:
- Michigan Dementia Coalition
Michigan Department of Health and Human Services: Dementia - Area Agency on Aging
www.mi-seniors.net
YOUNG ONSET RESOURCES:
- APDA Young Parkinson's Information and Referral Center
www.apdaparkinson
UnityPoint Health in Des Moines
Medical Director: Dr. Lynn K. Struck
Call: 877-872-6386
Email: apdaiowa@apdaparkinson.org
Address: 1200 Pleasant St., E-524, Des Moines, IA 50309
- Young-Onset Parkinson's
Young Onset Parkinson's:National Parkinson's Foundation
- Early Onset Parkinson's
American Parkinson Disease Foundation: Early Onset
PARKINSON PLUS ORGANIZATIONS:
- Essential Tremor
International Essential Tremor Foundation
www.essentialtremor.org
- CurePSP (Foundation for PSP, CBD and Related Disorders)
30 E. Padonia Road, Suite 201
Timonium, MD 21093
Toll free: 800-457-4777
E-mail: info@curepsp.org
www.psp.org
ADDITIONAL WEBSITE RESOURCES:
- Alzheimer's Association
www.alz.org - CareGiving.com Helping You Help Aging Relatives
www.caregiving.com - Medicaid and Medicare Assistance Programs
www.mmapinc.org/ - On-line Parkinson Resources
www.medscape.com/resource/parkinsons - Medscape
www.neurologychannel.com - The Neurology Channel on YouTube
www.caregiveraction.org - Caregiver Action Network
www.nlm.nih.gov/medlineplus/parkinsonsdisease.html - Medline Plus
www.worldpdcongress.org - World Parkinson Congress
http://www.nwpf.org/ - Northwest Parkinson Foundation
OTHER RESOURCES:
Huntington's Disease Society of America, Michigan Chapter
Deb Boyd - Regional Development Manager
P.O. Box 72
Richland, MI 49083
p. (269) 629-5452
f. (269) 629-4205
dboyd@hdsa.org
http://michigan.hdsa.org/
800-345-HDSA (Helpline)
212-242-1968 (National Office)
